It has been an interesting three weeks. Full of good days and bad.
My baby sister was married Friday. We were very worried I was going to be too sck to be able to make it. I had developed sever spasms shooting down my legs. They hurt like crazy and scared me to death. This is my parents 9th and last child to be married. it was very important to me to be there.
They put me on some drugs used for MS and a couple days before the weeding the spasms suddenly stopped and I was able to enjoy time with my whole family. My nausea also subsided for a few days, as well as the pain from my tumors.
Right on queue, symptoms have returned.
We just had a thunderbolt hit near the house, and for the first time in our married life we have a child sleeping on the floor in our room.
I am scared, but not unprepared. My legs have started to swell. I went to the doctor Wednesday and had 2.5 liters of fluid drained from my abdomen. There may be need for a permanent drain there in the future, because it all seems to have come back.
We are working with Palliative HomeCare and will decide after our next scans if we want to move to Hospice.
We are grateful for all the help we have been receiving. Truly the world is a kind place that will soften my children's blows. We wish we knew when this was going to happen, but the general consensus from the doctors is that there is no way to know.