I'm terribly exhausted but I know so many are curious about how today went. I went through with the chemotherapy (Carbo/Taxol I think, I will have to look it up). The Dr. thinks he can get 30% of people to respond to it up to 6 months. A response would possibly get my symptoms in control and we could move back over to the PD-1 or something. These possibilities are low. The Dr. said he is now focusing on quality of life more and this may give me some good months.
The chemo won't be bad. It takes 6 hours to infuse, repeat every 3 weeks. I think I'll be able to tell if it's working because guess what? My belly button is a melanoma tumor now. I've been watching it grow thinking it's becoming an outy because I was getting skinny. It isn't the one causing pain. The last couple of weeks we have watched what I thought was a rib tumor grow until it is easily seen and cupped with my hand. This is where I feel the pain. There are lots of nerve roots I guess under your ribs so it's a tender spot. The doctor thinks this is my monster tumor we have been watching just pushing the rib of place. Awesome.
Because of the pain we get to deal with pain medications. My pain pump is wonderful, but comes with consequences. Too tired to go into it, I will later.
I am so humbled by all the kind words written on my last blog entry. I want to write back to all of you, but the computer makes me so sleepy. I can't wait to hug and thank you. It gave me a piece of courage and meaning that I needed today. It seems like I am always saying "I'm not strong enough for that," or "I couldn't do that" And it may be true, but at the very moment you need that strength, it will be given to us.
I said yes to another round today. Fresh courage take.