I wish I had more to report. I tried asked the nurses to give me the PET scan results today, and they said they don't like to do that over the phone, can I come in on Thursday to see the doctor? Yes, but I am so very nervous, as I do feel a new lump. Well then...I can tell you it's not in the bones...and it doesn't look like there is something new there...
I do qualify to be screened for this cold virus trial done here in Utah (they decided they would only count the Temodar as an offical chemotherapy). The next thing would be making sure my blood has what they want, which will take a couple of weeks to find out.
I will look a little closer into the trial in Florida tomorrow. It is a randomized trial (I've hated that experience in the past). One arm gets the drug I want (anti-pd1), and the other standard chemotherapy. It may very well be worth a shot right now.
But this is all so boring. Take home message here is that everything is still up in the air, and it is going to take a while to qualify for a trial, so I better practice some patience.