Saturday, November 8, 2014

I've had so many people ask how I'm doing.  I hate to complain, but let's be honest: The new medications are giving me grief.  

The first few days I had no side effects, and the pain from my tumor disappeared.  I could laugh as hard as I wanted to.  I was so relieved.  Big deep breathes.

This week I developed red painful spots all over my lower body and upper arms.  My joints have been acting very old (painful).  This seems to come and go.  I started having fevers at night, major chills even when I didn't have a fever.  Barfing here and there.  My feet hurt to walk on.  One of the worst side effects has been sweating the bed every time I fall asleep.  Even after an exhausting night (changing my clothes and bedding 5 times), I get the kids to school and doze off, and immediately wake up freezing with big beads of sweat all over my skin from head to toe.  Sleep deprivation sucks.

So I called the doctor yesterday and I am taking a couple days off the drug and we can decide if we need to lessen the dose when I start back up next week.  This is a pretty typical scenario, it seems like most people are not able to tolerate the full dose.  A lot of the time the side effects wear off eventually, so I guess we will just see what happens.  

This has kind of taken me by surprise, as I thought the side effects would be pretty manageable with Ibuprofen.  And most things are not that bothersome, but when I can't get the fevers and shaking down with the medicine, it's just miserable.  

The other night the shaking started early enough for my kids to witness.  I hate being sick, but I really hate being sick around people.  And I really hate being sick around those people.   They are very concerned, bless their hearts.

Sam dug out the electric blanket, wrapped mu p, and held me really tight , trying to control my shaking.  Luke made me hot herbal tea and warmed up his rice warmer for my feet.  James played Christmas songs for me so I could keep my mind off the misery.  I think I'm in pretty good hands.

My family has helped me out a lot this week, and Josh is beyond helpful.  My kids are absolutely the easiest, funnest, most darling things on earth.  We have lots of strength and faith to draw from yet.


  1. You deserve to complain all you want! That sounds miserable. I hope you feel better soon.

  2. Sounds awful! I am so sorry things have been so bad and even sorrier I can't come over and help.

  3. I am sorry about the sweats, that's just simply annoying. What cute kids and hubby you have to help you no matter what. I hope you feel better soon.

  4. Ahhh, I'm so sorry - that sounds awful, I would be complaining way more. Love you and all those boys of yours. Your little family you've created is amazing - just like you!

  5. You have every right in the world to complain, I just wish so much that you had nothing to complain about...hopefully a little break from the meds is all your body needs to get back in and do this. I'm so happy you are surrounded by such a loving family. Know that you have lots more praying and thinking about you too.

  6. My dear friend. My heart aches for you. I wish you did not have to go through all of this yet again. You're a trooper and I love ya! Praying for you and hoping you're feeling better soon.