Sunday, January 5, 2014

what's going on?

Thank you for all the concern.  We are still at the hospital hoping things will settle down.  Tonight will be telling.  The doctor will make some decisions in the morning.  If things don't look better by tomorrow we will most likely do the Remicade (Imfliximab) infusion again.  The Remicade is supposed to stop the immune reaction that I'm having.  It usually works.  The first dose usually works.  But my immune system seems to be stubborn.

They are trying to keep me from any drastic measures (we are talking feeding tube or bowel surgery).  They are trying to rest my bowel so it can recover.  Last night they put me on TPN (all nutrients through a central line) so at least I'm getting some nutrients in me.

I would love to write how I feel about it all, but the steroids are messing with my emotions.   I can't trust them.  The only thing that seems constant is hunger.  I haven't eaten since New Year's Eve, and that small meal put me in the ER.  It is pure torture, but I can't take my eyes off of the Food Network, and in the halls I try and follow the meal cart around.  Every food commercial has me groaning.  I will never take food for granted again!!!!


  1. I sure hope things look better in the morning. Thinking of you

  2. That sounds nightmarish, Alisa. I hope round two works better.

  3. Good to hear from you, even though we do like Josh too. :) so glad things are looking up. I need to see my friend again. P.s. I didn't think working out with me was so awful that you would opt for this kind of weight loss instead. ;) p.p.s. just so you know, you are still stuck with me in your ward.

  4. I think you are behaving in a normal way with the food network. Someone once told me that anorexics love to cook food for other people. They prepare lavish meals and feed them to others. I know when I have been on strict diets I love to cook food that I can't eat. Just being around it is satisfying. I haven't been through what you are going through but Mary Kate surely did. I think she and Mary spent their time reading scriptures and the Ensign. They really are celestial people. Good luck and here are some happy thoughts - waffles w/ strawberries and whipped cream, Fettucini Alfredo, Quiche Lorraine, Happy Meals . . .