Tuesday, January 7, 2014
home
I made it home. Wish I felt good enough for a great meal. So happy to be with the boys again and take a bath.
Monday, January 6, 2014
improvement
I am eating tonight, it feels SO good. If all goes well I will be home tomorrow with my PICC line just in case I get sick again. Thank you for the well wishes.
advancing diet
We are going to try out some clear liquids this morning, and depending on how that goes, I may be able to go home and do the TPN there.
I am feeling much better (no nausea and lots of energy) so we hope food won't ruin it. Thank for all the fasting and prayers, they mean the world to us.
I am feeling much better (no nausea and lots of energy) so we hope food won't ruin it. Thank for all the fasting and prayers, they mean the world to us.
Sunday, January 5, 2014
what's going on?
Thank you for all the concern. We are still at the hospital hoping things will settle down. Tonight will be telling. The doctor will make some decisions in the morning. If things don't look better by tomorrow we will most likely do the Remicade (Imfliximab) infusion again. The Remicade is supposed to stop the immune reaction that I'm having. It usually works. The first dose usually works. But my immune system seems to be stubborn.
They are trying to keep me from any drastic measures (we are talking feeding tube or bowel surgery). They are trying to rest my bowel so it can recover. Last night they put me on TPN (all nutrients through a central line) so at least I'm getting some nutrients in me.
I would love to write how I feel about it all, but the steroids are messing with my emotions. I can't trust them. The only thing that seems constant is hunger. I haven't eaten since New Year's Eve, and that small meal put me in the ER. It is pure torture, but I can't take my eyes off of the Food Network, and in the halls I try and follow the meal cart around. Every food commercial has me groaning. I will never take food for granted again!!!!
They are trying to keep me from any drastic measures (we are talking feeding tube or bowel surgery). They are trying to rest my bowel so it can recover. Last night they put me on TPN (all nutrients through a central line) so at least I'm getting some nutrients in me.
I would love to write how I feel about it all, but the steroids are messing with my emotions. I can't trust them. The only thing that seems constant is hunger. I haven't eaten since New Year's Eve, and that small meal put me in the ER. It is pure torture, but I can't take my eyes off of the Food Network, and in the halls I try and follow the meal cart around. Every food commercial has me groaning. I will never take food for granted again!!!!
Friday, January 3, 2014
NPO
Well, Alisa was feeling really good this morning. They had even planned on letting her go today at 5:00 pm.
Then the diarrhea started again at about noon. They called at 3:45 and decided she would be staying through the weekend. They will be giving her a TPN (all her nutrients through a central line, nurse friends please feel free to elaborate, or correct my errors.)
They tested her for C-Diff, but that came back negative, so that is good news. I guess.
They will give her fluids and nutrients through IV and hopefully her bowel will recover enough to let her go home Monday. If not, they have some plans for another dose of Infliximab.
p.s. there is a whole new level of fascination with cooking shows. we have been watching all day.
Then the diarrhea started again at about noon. They called at 3:45 and decided she would be staying through the weekend. They will be giving her a TPN (all her nutrients through a central line, nurse friends please feel free to elaborate, or correct my errors.)
They tested her for C-Diff, but that came back negative, so that is good news. I guess.
They will give her fluids and nutrients through IV and hopefully her bowel will recover enough to let her go home Monday. If not, they have some plans for another dose of Infliximab.
p.s. there is a whole new level of fascination with cooking shows. we have been watching all day.
Thursday, January 2, 2014
New Years Update
From Josh - again
Alisa started her steroids and has been sick off and on since Saturday. It seems like the steroids work to make her feel better, but when the drugs wear off she is sick (and miserable) again.
We went to the ER on New Years Eve/New Years Day at 4:00 AM, she had been throwing up and diarrhea all evening and was very de-hydrated. We were in good company (drunks and others that maybe enjoyed the new year too much). She felt better after they gave her 3 bags of fluids and some IV steroids.
Then she was sick again last night. Dr Grossman called this morning and told her to come in for an infusion of infliximab (I think) at 2:00. When she got here they found she had a fever and decided to take some additional precautions. They are going to take a scan of her abdomen to make sure there is no perforation, they are also going to admit her to the hospital. so we will be spending at least tonight here at Huntsman. I have to say the chairs here are much more comfortable than the ones at the ER and expect I will have a pretty good nights sleep.
Alisa started her steroids and has been sick off and on since Saturday. It seems like the steroids work to make her feel better, but when the drugs wear off she is sick (and miserable) again.
We went to the ER on New Years Eve/New Years Day at 4:00 AM, she had been throwing up and diarrhea all evening and was very de-hydrated. We were in good company (drunks and others that maybe enjoyed the new year too much). She felt better after they gave her 3 bags of fluids and some IV steroids.
Then she was sick again last night. Dr Grossman called this morning and told her to come in for an infusion of infliximab (I think) at 2:00. When she got here they found she had a fever and decided to take some additional precautions. They are going to take a scan of her abdomen to make sure there is no perforation, they are also going to admit her to the hospital. so we will be spending at least tonight here at Huntsman. I have to say the chairs here are much more comfortable than the ones at the ER and expect I will have a pretty good nights sleep.
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