Had a great visit with the Doctor today. I couldn't wait to report all my tumor shrinkage (and more importantly that I have felt nothing new pop up since we saw him last). I felt like a child with a new trick for his parents. I had one especially ugly tumor near my right arm pit. You could see the black tumor through the skin. It was so ugly. I thought I would never be able to wear a swimsuit again. Well now it is a tiny round ball. So small I don't know what to compare it to, maybe a seed? All other tumors shrunk or disappeared. The back stabber-GONE.
And guess what he tells me? He says he thinks it's the IPI that is working! He says the Temodar is not that potent of a chemo to respond so quickly. What?!
If it is possible to feel bullet proof and completely humble at the same time, it was me, then, there.
But then the trouble was explained. I have to get off of steroids before I can do another round of IPI. I tapered down this week (started taking half the dose) with maybe not so perfect results. If I can't get the diarrhea under control without steroids I could loose my chance at doing IPI again. Very real possibility with the reaction I had.