Tuesday, July 17, 2012

bulllet proof

Had a great visit with the Doctor today.  I couldn't wait to report all my tumor shrinkage (and more importantly that I have felt nothing new pop up since we saw him last).  I felt like a child with a new trick for his parents.  I had one especially ugly tumor near my right arm pit.  You could see the black tumor through the skin.  It was so ugly.  I thought I would never be able to wear a swimsuit again.  Well now it is a tiny round ball.  So small I don't know what to compare it to, maybe a seed?  All other tumors shrunk or disappeared.  The back stabber-GONE. 

And guess what he tells me?  He says he thinks it's the IPI that is working!  He says the Temodar is not that potent of a chemo to respond so quickly.  What?!

If it is possible to feel bullet proof and completely humble at the same time, it was me, then, there.

But then the trouble was explained.  I have to get off of steroids before I can do another round of IPI.  I tapered down this week (started taking half the dose) with maybe not so perfect results.  If I can't get the diarrhea under control without steroids I could loose my chance at doing IPI again.  Very real possibility with the reaction I had. 

At the Huntsman Cancer Institute.  "Fire away, fire away.  I'm bulletproof, nothing to lose
fire away, fire away
ricochet, you take your aim
fire away, fire away
you shoot me down, but I won't fall
I am titanium
you shoot me down, but I won't fall
I am titanium."
 
I keep singing that song.  I start the Temador again tonight.   And hope so much that in three weeks I will be able to add IPI to it.  Because dang it!  It's working!

15 comments:

  1. There will be many prayers and crossed fingers that your colon will get it's act together and you can do the IPI as many times as is required. It's working!!! Now whenever I here that song (and it's on all the time) I'll think of you and say a prayer.

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  2. Oh, I hope it does! Yea!! Prayers still coming....

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  3. You are the queen of beating the odds. Keep at it!!

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  4. Now listen here, colon. You do your job, and let IPI do it's job. That's it!

    OK, Alisa, you're good to go!

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  5. I am so so glad to hear this. And I expect and pray for nothing less my dear! You and your family deserve the best, which means you in it for a long long time. So happy for you!! xo

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  6. DID YOU HEAR THAT SOUND????? It was the cheers at the Bench house! We are all cheering for you and your family! YAYYYY!

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  7. Yay, yay, YAY is all I have to say!!

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  8. That's awesome Alisa!! I love that song--and I will think of you now whenever I hear it!! Love ya!

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  9. Cheers being sent your way!!! So happy for this news.

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  10. 40-Love, game, set, match! Keep it up Girl!- prayers from Ohio

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  11. Halleluiah and much praises! Made me cry with joy to read your update...Haven't been on since I got back from Trinidad. The prayers continues.....

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  12. I just caught up on all your posts, my gosh what a roller coaster just reading them, I can only imagine LIVING them! I hope this high stays high and your body just keeps doing what is should. You are incredible, and like all the other comments say, if anyone can do this, it's YOU! I love you and your family and continue to pray for you all the time.

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