Friday, November 30, 2012

trial

 We had a great Thanksgiving holiday.  I kept thinking over and over how grateful I am to have so many reasons to fight.  And I got to spend the whole weekend with the most important ones.

I have been on the phone and email trying to get the ball rolling with the trial I am trying to get into.  Yesterday my doctor (lovely man!) called to let me know he talked with the doctor who is running the Anti-PD1 trial and it looks like I will have a good chance at qualifying.  I have an appointment on Dec. 17th in Oregon, and if all goes well, I will be traveling up there weekly for the first two months, then every-other week after that.  I will do this as for long as I'm responding, with scans every 2 months to check on my progress.  When the drug is approved, I would be able to get it here.  But that could be a while.  The infusion will only take 3 hours or so, so there will not be nights in the hospital, thank goodness!  The side effects are usually minimal.  Just pray for me that I can get on this trial.  It is the only thing that sounds fun right now.

We have had a rough week emotionally with the reality of our situation.  Luckily, it has gotten better every day.  I feel great physically, I feel really good about this trial, and I still have an incredible amount of fight in me.  December 17th can't come soon enough!

12 comments:

  1. Here's praying that the 17th comes quickly, that you can get into the trial and that you can be cancer free sooner than later! I love the fight in you! Stay strong~ Sending love and prayers your way!

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  2. Here's praying that the 17th comes quickly, that you can get into the trial and that you can be cancer free sooner than later! I love the fight in you! Stay strong~ Sending love and prayers your way!

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  3. fingers crossed for you guys that you get into the trail!!!! we are thinking about you guys alot and wishing we were closer to do something.. {{HUGS}} and prayers

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  4. So glad this could be an option--I'm feeling good about it, too.

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  5. You and your family continue to be in my thoughts and prayers daily! Wishing you the best! You are a beautiful example to us all!

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  6. I'll be praying for you and for Dec. 17 to speed along. Way to stay strong - you're amazing.

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  7. Why was the radiation not an option? Praying for you always.
    Kristi Hankins

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  8. So glad to hear you have a lot of fight left in you! You can do this! Many prayers coming your way for the trial.

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  9. Wow, that sounds like a lot of driving. You'd better get some good ebooks or something.

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