What's worse than a brain tumor? How about TWENTY FIVE brain tumors?! I didn't even know that was an option. It seems very extreme, and the Dr. says not common.
It is bad (really bad). But not hopeless. I will start IPI (Yervoy) next week in combination with the oral chemo Temador. Explanations to come, but now I need to catch my breath (and change the laundry, and water the flowers, and feed the kids).
I don't even know what to say except...go IPI and Temador!
ReplyDeleteHugs and prayers.
ReplyDeleteThat sucks, Alisa, but thanks for the update. We're praying for you. I think Seth repeated that 3 times in his prayer tonight.
ReplyDeleteThis feels so devestating to me, I can't even imagine what you guys are going through. I am so so sorry. I love you guys!
ReplyDeleteThinking of you, Alisa. Love you.
ReplyDeleteI can't even process this... I'll be waiting on the edge of my seat for more information. I just love you.
ReplyDeleteYes, that is wicked. Oh, I can't stand to know you are suffering so much. Even thought I have never met you, I worry about you and think of you often...storming heaven.
ReplyDeleteI am with everyone on this one.. I have no words! I do have Faith and I do have Hope! I do continue to pray and put your name in at the temple, you have always been so straight forward with all of us, I cannot even begin to think that I know what your going through. ((hugs)) and loves.
ReplyDeleteI have no words either! I am so sorry! You are in our prayers and we pray that a mirace happens. I wish there was something more I could say or do.
ReplyDeleteLove you all. VERY sad to hear this news, but we will keep praying and hoping for the best.
ReplyDeleteWhat?!!!! That makes me sick! You probably passed right by me through your eastern travels. Looks like you had a fun time. I need more Doctor info. I'm sure you are frustrated but glad to see you're not giving up!
ReplyDeleteSending prayers up for you Alisa. Love ya
ReplyDeleteSo heartbroken to read this. I am thinking that this is what the nurse meant when she said it gets worse (exceptionally worse) before it gets better (exceptionally better)! You are a fighter and it is inspiring! Love you! You are in our prayers!
ReplyDeleteWow. I'm praying for you and your family. Love ya.
ReplyDeleteOh my Alisa - totally something wicked.........Here's to the awesome of IPI and Temador and you!!!! We are praying for you!!!
ReplyDeleteTears and so many prayers for you... I did read something last week from Neal A. Maxwell and thought of you... "The Lord knows our bearing capacity, both as to coping and to comprehending, and He will not give us more to bear than we can manage at the moment, though to us it may seem otherwise...President Brigham Young said of a geographical destination, 'This is the place.' Of God's plan of salvation, with its developmental destinaion, it can be said, 'This is the process!"
ReplyDeleteYour process seems so hard. You are so strong.
Alisa-I have been wanting to say something all week, but honestly, this kind of news leaves me speechless. I've been thinking about how I'm about the same age you were when you were first diagnosed, and let me tell you, making that comparison has only increased my respect and love for you. I am literally in awe. You handle everything with so much grace and hope. You are always thinking of others. You have amazing boys who are kind and intelligent and respectful. Honestly, I don't know how you have done it all. You are amazing. Even though we feel like we're kind of in the background when it comes to those who are helping and supporting you, we love you so, so much, and we think about and pray for you almost constantly.
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