Tuesday, August 7, 2012


Talked with the Doctor today before my IPI infusion. He doesn't know the best course of action to take here. Should we give another dose and risk some life-altering/life-threatening complications?

We decided to do a few tests this week and see what kind of damage we have done, then decide if we should give the next dose or not. I am at the eye center right now (I have had a little blurry vision, but the eye Doc is saying things look okay). I will have a colonoscopy Thursday and if it looks good, we will do the IPI on Tuesday. If there is significant damage to the colon and we don't do IPI on Tuesday, we will not be able to do the IPI again. We would just hope for the best, scan in September as planned, and go from there.

I really want another dose, but I understand. When the oncologist is hesitant (these guys will take you the brink of death to get rid of the nasty cancer), I listen.


 I asked if the IPI could work with just one dose, and he said it is a possibility, but in the studies that were done half of the patients got all four doses.

Josh is feeling really good about this plan. He has been worried about the next dose. I have just been prepping for a very ill couple of weeks, so I'm a little thrown off. I will start another round of Temodar tonight, which will make me sick for the week. But nothing like I was prepared for.

I will keep you posted. Hopefully our decision will be an easy one when all the test results come back.


  1. Double sigh. I also hope there is no question about the course to take.

  2. I really wish I could take on this junk from you for a few days so you could have a vacation from doctors.

    We will keep your doctors in our prayers so they'll know what is the best direction to go.

    In the mean time, go get a pina colada Slurpee. They are guaranteed happiness.

  3. I am so sorry for the delay, but I'm glad you trust your docs. We, too will keep your doctors in our prayers so they know what to do. And, of course, you're always in our prayers~

  4. Praying the doctors know just what to do!

  5. Praying here too. Hope you are not too sick this week after the Temodar. (I type that like I know somethig about cancer medication.)

  6. Hope you do well in all that you choose to do. Only you know how you fell and what you can do. good luck and we will keep praying for you