Blood work looked good yesterday. The doctor said I looked great. Not to brag, but most people tell me that. :) It's a little crazy, you would never know to look at me.
I had lots of questions for the doctor, but figured we will know more in a couple weeks after the scans. I had the dates wrong, I will be scanned on the 10th and find out results on the 11th. This was a relief, as Josh's birthday is on the 12th (the day I had it in my schedule) and as superstitious as I try not to be...well, we just weren't excited about it being on a birthday this year.
The doctor did clarify that if we were at a point at needing more IPI, we could do the testing again and see if that would be a possibility. I was very relieved, as I'm pretty freaked out I would loose my mind if I felt another tumor. Knowing there was a medicine out there that would help it, and I couldn't have it.
So far, though, I do not feel more tumors. Just one stubborn tiny one on my rib that has not changed.
I took one of each of my anti-emetics last night with the Temodar, with great
results-no nausea! Slept through the night. Just a little sleepy now.
The plan: I get to reduce the Temodar to every 4 weeks instead of every 3. We will scan every 8 weeks after this next scan. We still have radiation as an option if the brain mets persist. We may be able to qualify for an Anti-pd1 trial if we can stabilize the brain. We still have the braf drugs in our back pocket.
Take-home message from the appointment was that we still have time and options left. So grateful for both!