The nurse practitioner came into the room with the biggest smile on her face. "Good news?" I ask, as my smile starts matching hers. "Yes, just read it." She handed me the print out from the radiologist.
MRI Brain wwo Cont
"Just skip to the end."
Interval near complete resolution of enhancement associated with multiple metastatic lesions. Very faint residual enhancement associated with a right frontal parafalcine mass. No new enhancing lesions, acute ischemia, or hemorrhagic metastases.
Me (kind of tearing up): "So this is uncommon, yes?"
Her: "This like...never happens."
She hands me the other report.
PET CT Whole Body
Again I skip the bottom.
1. Marked interval improvement suggesting treatement response having demonstrated between 50 and 100 hypermetabolic lesions on prior imaging, now demonstrating 4 hypermetabolic lesions. Lesions include a right adrenal nodule, nodule superior to the right kidney, anterior mediastinal nodule, and right axillary node.
2. Increased activity withing the right maxilla consistent with periodotal disease.
3. Multiple small metastatic lesions demonstrated on the prior MR of the brain are too small to characterize by PET.
You read that right. 4 tumors left.
She pulled up the scans. The organs (heart, bladder, kidneys) are lit up too, but the little dots are cancer.
|June 22nd. Cancer everywhere. They aren't even counting the tumors, 50-100 seems like a broad range. Pretty devastating.|
|Miracle. September 10th. 4 tumors remain. This is not a great thing to have, unless you looked like the first photo. Pretty incredible!|
"I wonder if the guys reading these scans are thinking "What are they giving this girl?" We laughed.
Although they can't predict what happens next, we are hoping my immune system will continue to take care of the cancer. We are going to keep up with the Temodar, and eventually even get me off of that and see what happens. Scan again in 2 months.
We begin living that next chunk of life right now. So excited!!
By biggest hope was to get to drive again (mostly because it would mean the cancer was gone in the brain). I didn't honestly think it was a possibility. Today I really wanted to take a road trip, but Josh keeps reminding me it isn't a practical week for us (alright, it is his birthday tomorrow after all). I guess we aren't in hurry any more! :)