So today we scheduled an infusion on PD-1 for the 15th (the earliest they could get me in). I am getting appointments with a surgeon and an interventional radiologist. The surgeons in the tumor board thought that because of the risks of the surgery if there is anything I can do to shrink it, that would be preferred. The risks seem to be the same as they were before I started BRAF when I talked to a few of them. I am worried if it continues to grow that the surgery would get harder. They thought it would be the same surgery in the case that it keeps growing and we don't get a response from the PD-1.
One idea they had is to try and de-bulk the tumor with radio-frequency ablation. We are not sure I'm a candidate for that, but we could possibly do that while I'm on PD-1, or we can do the surgery after we start the PD-1 if we need to. I will talk to the two doctors and we can see what can be done.
Today has been a painful day. I am going to start taking my pain killers around the clock so I don't let the pain get out of control like it did this morning. Things get pretty hopeless when your insides are screaming. I've had pain before, but it's always been easily controlled. This seems to be something different. It is terrifying to take Percocet and not be able to tell a difference in the pain. We have a prescription for a long acting pain killer, and it really might come to that.
What keeps me going today is a quote from my friend Cory's Facebook update. January 1st he completed a 72 hour race. His goal was to get to 200 miles (can you even imagine?). He checked into Facebook at one point, "Currently at mile 174. My leg muscles are in knots unlike anything I've experienced before (duh) and they don't want to unkink. But it's down the one last marathon."
Down to one last marathon.
I'm ready to finish this fight.