When we got the word of progression from our last scans the doctor said my best options were the TIL trial or the Braf drugs. I have always said no to the braf drugs until I absolutely need them (they usually work well, but for a short period of time). The doctor thought we could try surgically removing the tumors after the BRAF had shrunk them, or start on something else like AntiPD-1 (the drug I got in Florida that will be FDA approved this fall) before the braf started to fail.
I said for sure we do the TIL. And then we got going with the process. The insurance denied coverage. We appealed, they denied again. We got an estimate for our cost as self pay. One hundred and eighty nine thousand dollars. Best case scenario.
p.s. I created the title (Josh) so forgive the lack of creativity. my job was to get the video uploaded