Wednesday, July 30, 2014

bad hair day

Yesterday was a rock bottom kind of day.  It seemed to be the peak of the chemotherapy and the IL-2 effects.  Fevers continued.  Fluid everywhere.  Mouth raw and esophagus burning.  Nausea.  Diarrhea. Itchy, red, irritated skin.  No sleep for days.  Feeling sick for almost weeks.  And then the hair started coming out by the handfuls.



That was when the girl on the floor who gets things done put me in a chair and got that pesky hair out of the way.  It was so all of the sudden.


We got video, but let's just say it's not one of those beautiful, triumphant moments of warrior preparing for battle.  I am like semi conscious and about to barf.  We can't get things from my camera onto my computer right now (seriously? haha) but trust me when I say it was just ugly. 


I think it's fitting that my gown didn't even have middle snaps on the sleeves that day.  Ultimate bad day.

They gave me a unit a blood at night and that did seem to pick me up a great deal.  I said a prayer for the person who donated that blood, it must have come from a very warm heart.  God bless.

Josh took me getting better as an opportunity to get the hair job done right.

Uneven, Josh could never live with this.

Of course the mohawk first

I think I make a cute 17 year old boy.


Josh keeps smiling at me and saying he thinks he's looking at a movie star.  I'm telling you there is no better husband.


I haven't really been sad about the hair yet.  I am not looking forward to having the lyphedema sleeves and the bald head-there's a lot to stare at there.  But you aren't bald for long.

I had a "Toast to Good Hair and Good Friends" party the night before I left.  So I got to say goodbye all those years of long hair with some of my best friends.  My sister did my hair and I think it turned out perfect.  I would love to show you pictures, but you know me and my technical difficulties.  :)

Well Jennie got a shot of the night, and look at that battery power!

14 comments:

  1. Awww...you ARE BEAUTIFUL!!! I remember when Shelbie's long locks fell out...it's a startling moment! I'm sorry you have so much suffering going on! I hope they got you the magic mouth rinse for your sore mouth. Sending prayers and hope that you start to see the light at the end of the tunnel! You are a warrior!

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  2. I can't wait to see all the cute hair styles you'll get to experience while your hair grows back. It's almost like what every girl would dream of doing, but never have the guts to.

    You're the toughest person I currently know, Alisa. There is always the middle point that happens when you decide to take the hard route, when you'd give almost anything to back out. Luckily, the only way out is through...hopefully you're almost through!

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  3. I can't get over how pretty you are bald.

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  4. You really do look gorgeous bald! I love that shot with you and Jennie and also love Josh's shave job.

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  5. Alisa...I'm so sorry for the suffering, worry, stress, heartache and misery you are going through. I have always admired you so much for your amazing way of handling this whole cancer battle. You are beautiful...truly...because of who you are. You are faithful, courageous, cheerful (but no one expects you to be that way all the time) unselfish and humble. Thank you for who you are. I am inspired to be a better person because of you. I'm praying that you can have just a little peace from the suffering (even if it's just for a few minutes) so that you can feel strong again to keep up the battle. You are a warrior!!

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  6. You really do look like a movie star! Like I said yesterday, bald is great! On the other stuff, though, I'm so sorry for how sick you are--I can't even imagine bc my chemo was spread out over a year. You can do this bc you are you!!

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  7. I love your honesty and your "matter of factness" about it all. You do make bald beautiful. Seriously, you have the most perfectly shaped head. We love you and pray nightly for strength for you to keep fighting and more miracles on your behalf. So glad Josh is there by your side to hold you up and make sure your shaved head is done right. (He would be the expert:)) Love you!!

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  8. You are amazing! And beautiful and strong! We're all thinking of you and cheering you on back here!

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  9. Wow. You have survived so much. sorry you had to be so sick. Starting now you get all of the stages of hair lengths.

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  10. I couldn't even get through reading thus lost without tears, the part that hit me hard was where you said you said a prayer for the blood and the warm heart of the person who donated it. You really do appreciate every small act of intervention you have been given, your truly, truly remarkable. I agree Josh is right you are a beauty if a movie star, your beauty us much prettier then the Hollywood type. You are gorgeous. May you feel the love from everyone.

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  11. Bald is beautiful and you are the most beautiful! You are so gracious and lovely - I wish you didn't have to go through all of this. And, who knows... you might end up liking the "short" hair! :)

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  12. You honestly look cool. You've got the face for it too darlin'! That pic of us is my favorite as of late. Probably because I don't have a lazy eye in it. ��

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  13. This is beautiful Alisa. We're proud of you and praying for you & your family. (P.s. Hair is overrated anyway)

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  14. You are beautiful, my dear! You rock that bald head way better than most! The good thing about hair is that it grows back rather quickly! I'm praying so much for you and know this treatment will work its magic!

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