How was your week at the hospital? Honestly, it was pretty horrible. I remember a lot more. I was a lot sicker. I might be a little tramatized. I could go into details, but yuck.
How are you doing? Feeling pretty beat up, honestly. I am up and out of bed today walking around a little. Ever day I get so much better, but have spent most of the day in bed again. The biggest thing I'm dealing with right now is getting rid of the fluid (I have 6 pounds to go). It is loving my leg with lymphedema, but I think tomorrow it will be good enough to get around on. The most annoying thing I'm dealing with is night sweats. I have finally figured out how to wipe myself off and change the bedding several times a night without too much disruption to sleep. Still, I would love to go to bed at 11 and wake up at 7 or something. Can't wait.
What is the deal, you got your PICC line out, are you done with treatments? Oh, I wish. Here is the plan: We do a body scan and a brain MRI on March 12th. Really soon. We will be able to see if this is helping at all, not hurting, or if the cancer is spreading. If it is helping or not hurting (no real growth) we are scheduled for another cycle of IL-2 (a cycle is the two week course I just completed). We would start that in I think 4(ish) weeks. We would then do the same thing, scan, wait a month, do it again. They will only do 3 cycles, so I would be done with IL-2 I believe in June.
What about Maryland and your trial? We will see what the scans say. We are not making appointments in Maryland for March, hoping we can still do some more IL-2. But like I said, we will see.
What are you going to do with your month off? Haven't even gotten there yet. Can't even imagine feeling good right now. I am guessing there will be at least one trip involved, many thank you notes sent out, more figuring out the best way to run the family while I'm sick. I'm sure it will be hard to just hope that my immune system will kick in and not be actively involved in fighting. More mental hurdles. We are getting used to those.
What can I do for you guys? We know most people feel pretty helpless, but we feel like we have been strengthened by your prayers. We are so grateful for everything. I sound like a broken record, but we are the most spoiled people in all the world.