It was a rough night last night.
Almost like clock work, 2 hours after Alisa receives the drug she starts to shake (uncontrollable shivers), they give her some medication (demerol) and it goes away within a minute or so. Last night it didn't work and she was shaking for about 30 minutes before she settled down(a couple doses of demerol and one of dilaudid).
We were awake till about 3:00 AM because her blood pressure was pretty high and so she was not at all sleepy.
Remember yesterday I told Alisa maybe we could go home this morning if she got through her 8th does. First thing this morning they came in and told us it would be best if they could get another dose in today. They say the treatments are cumulative, so the more we can get in a short time, the better. We definitely feel like things get cumulatively worse, so maybe they are right. As of right now (6:45 PM) we are still recovering from the 9th dose and will be coming home tomorrow morning.
Here is a picture of her from tonight.
Oh, Josh, wow. What can be said? I know I'd have much rather been the sick one than the caregiver, and you seem to feel the same way. Hang in there, as trite as that sounds....know that you are in so many prayers. Every one I say everyday. Love to you both.
ReplyDelete(Buffy Epperson)
Josh, you are THE MAN for holding her hand through all this. We'll keep praying.
ReplyDeleteKeeping you both in my thoughts and prayers. May God bless you both!
ReplyDeleteI want to leave comments so you know I'm reading and care what's going on, I just don't know what to say. Sounds so frustrating and miserable but each day you're closer to going home right? Hang in there!
ReplyDeleteIf you only knew how many people I know who are following your story and feeling so deeply for you both! It is hard to comment, but I comment for all I know who don't, THANK YOU! Your courage and faith are a blessing to us all.
DeleteIf you only knew how many people I know who are following your story and feeling so deeply for you both! It is hard to comment, but I comment for all I know who don't, THANK YOU! Your courage and faith are a blessing to us all.
DeleteThis reminds me of some of my chemo posts--just when I thought I knew what to expect, something changed. I hope you get good surprises now.
ReplyDeleteyikes. You are in all of our prayers too.
ReplyDeleteOh, I wish I could say something that would sound ok! What I can continue to say is I am thinking about you all and we are praying for you! Alisa, you are beyond amazing! Such a beautiful, beautiful girl. Josh- what a guy: I just cannot even imagine. ((hugs)) to all.
ReplyDeleteThinking of you Alisa... praying, praying, praying! You are so great to her Josh! So glad you two have each other!
ReplyDeleteWhat a nightmare! We're thinking about you guys all the time.
ReplyDeletenot sure how you do it all I know I could not do all that your family does. Best of luck and we will keep praying for you
ReplyDeleteLove is the reason for enduring all of this!
ReplyDeleteIt's a good reason.
...and you two and your family are obviously
VERY LOVED!