Prepping today for another week at the hospital. James has been nervous for me, always asking how I think round 2 will be. I prayed today that we could have a good week next week and he afterwards was shocked. "Mom. A good week? With IL-2?"
I found some pictures on Josh's phone.
Inserting the PICC line (threading a catheter up to my heart). Hate this part.
Trying to control fevers I think on the second day. Ice under the arms, and cold washcloths.
Gaining weight rapidly. Do I look like I need a shower?
Josh says I went on at least a couple of walks every day. Hopefully next week he can remind me to put my hair in a pony or something before we leave the room.
Nearing the end of the week.
Thrush because I killed off all my normal bugs to keep the fungus away. I requested an orange pop cycle, the first thing I could eat in a while.
So...Il-2 is a protein that our bodies naturally make. It aids in the immune system. By giving me large doses of synthetic IL-2, we are kind of mimicking a major infection. I guess that is what it feels like a bit, a week of mastitis or something. When we have an infection, our capillaries leak out fluids so that our fighting cells can get to the bug and destroy it. This is why I gain weight, the capillaries let the fluids out. I think this is why we have to monitor my blood pressure and heart rythum so closely, because of the fluid in all the wrong places. This also messes with the electrolytes, and they hung bags of calium, potassium, magnesium, etc. to keep the blood levels stable.
James asks if I am more scared this time than last. Honestly, I'm not really scared of the treatments. I am only scared of them not working.